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Check if there are any clinical trials for LBWD syndrome - HERE    

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Suggested Resource for LBWD syndrome (GARD)

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx


Free Disease Report? Try NORD

Medication Assistance?  Try NORD & NeedyMeds

Scholarships? Try HEATH




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